Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations
Top Cited Papers
- 3 November 2011
- journal article
- review article
- Published by Springer Science and Business Media LLC in Quality of Life Research
- Vol. 21 (8), 1305-1314
- https://doi.org/10.1007/s11136-011-0054-x
Abstract
While clinical care is frequently directed at making patients "feel better," patients' reports on their functioning and well-being (patient-reported outcomes [PROs]) are rarely collected in routine clinical practice. The International Society for Quality of Life Research (ISOQOL) has developed a User's Guide for Implementing Patient-Reported Outcomes Assessment in Clinical Practice. This paper summarizes the key issues from the User's Guide. Using the literature, an ISOQOL team outlined considerations for using PROs in clinical practice; options for designing the intervention; and strengths, weaknesses, and resource requirements associated with each option. Implementing routine PRO assessment involves a number of methodological and practical decisions, including (1) identifying the goals for collecting PROs in clinical practice, (2) selecting the patients, setting, and timing of assessments, (3) determining which questionnaire(s) to use, (4) choosing a mode for administering and scoring the questionnaire, (5) designing processes for reporting results, (6) identifying aids to facilitate score interpretation, (7) developing strategies for responding to issues identified by the questionnaires, and (8) evaluating the impact of the PRO intervention on the practice. Integrating PROs in clinical practice has the potential to enhance patient-centered care. The online version of the User's Guide will be updated periodically.Keywords
This publication has 77 references indexed in Scilit:
- The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008Journal of Clinical Epidemiology, 2010
- Using the Health Utilities Index in Routine Clinical Care: Process, Feasibility, and AcceptabilityThe Patient - Patient-Centered Outcomes Research, 2009
- PatientViewpoint: a website for patient-reported outcomes assessmentQuality of Life Research, 2009
- Lester FirkinsThe Patient - Patient-Centered Outcomes Research, 2009
- Prospects and challenges in using patient-reported outcomes in clinical practiceQuality of Life Research, 2008
- Patient Difficulty Using Tablet Computers to Screen in Primary CareJournal of General Internal Medicine, 2008
- Effectiveness of health-related quality-of-life measurement in clinical practice: a prospective, randomized controlled trial in patients with chronic liver disease and their physiciansQuality of Life Research, 2008
- What is "quality improvement" and how can it transform healthcare?Quality and Safety in Health Care, 2007
- Strengthening the contribution of quality improvement research to evidence based health careQuality and Safety in Health Care, 2006
- Should we screen for depression?BMJ, 2006