The Role of Family-Centered Care in Research
- 1 October 2008
- journal article
- research article
- Published by Ovid Technologies (Wolters Kluwer Health) in Topics in Language Disorders
- Vol. 28 (4), 323-339
- https://doi.org/10.1097/01.tld.0000341127.93533.bd
Abstract
Families and their children with special healthcare needs require effective interventions to address children's needs in the context of daily family interactions. This article offers a unique perspective to understanding the role of family-centered care. It extends beyond expected practice in service delivery to the role of families in the implementation of intervention research, specifically when collaborating with families of children with autism spectrum disorder. Two intervention studies are described involving children with autism spectrum disorder and their families and the application of principles of family-centered care. Elements of family-centered care demonstrated in the intervention research are summarized. Finally, specific challenges are described associated with conducting family-centered intervention research and suggestions are offered to clinical researchers to inform future research endeavors.Keywords
This publication has 36 references indexed in Scilit:
- Walk a Mile in Their ShoesTopics in Language Disorders, 2008
- “Let Me Just Tell You What I Do All Day…”Infants & Young Children, 2007
- Preparing Speech-Language Pathologists as Family-Centered Practitioners in Assessment and Program Planning for Children with Autism Spectrum DisorderSeminars in Speech and Language, 2006
- The conflict between random assignment and treatment preference: implications for internal validityEvaluation and Program Planning, 2003
- A Family-Centered Prevention Approach to PBS in a Time of CrisisJournal of Positive Behavior Interventions, 2003
- The Vermont Rural Autism ProjectFocus on Autism and Other Developmental Disabilities, 2002
- Families and professionals as collaborators in assessmentTopics in Language Disorders, 1993
- Ecocultural Theory as a Context for the Individual Family Service PlanJournal of Early Intervention, 1990
- The Effectiveness of Parental Screening of At-Risk InfantsTopics in Early Childhood Special Education, 1989
- Ecology of the family as a context for human development: Research perspectives.Developmental Psychology, 1986