Using patient-reported outcomes in clinical practice: challenges and opportunities
- 25 November 2008
- journal article
- Published by Springer Science and Business Media LLC in Quality of Life Research
- Vol. 18 (1), 99-107
- https://doi.org/10.1007/s11136-008-9413-7
Abstract
Introduce and explore issues at an international conference about the use of patient-reported outcomes (PROs) in clinical practice. Review of salient literature, clinical and personal experiences, conference presentations and discussions, and post-conference comments from outside experts. PROs (information from patients about a health condition and its management) have been assessed through self-reports for at least four decades. Traditional applications are in clinical and health services research. Uses in clinical practice, although increasing, are less common and more challenging. PROs can enhance the understanding of patients’ experiences and responses to therapy and inform clinical practice. We pose and discuss four main questions: (1) Will clinicians accept PRO measures? (2) Will clinicians use PRO measures? (3) Will measuring PROs actually improve those outcomes? (4) Will PROs be perceived as having other, less salutary purposes? A patient-centered perspective on PRO measurement presents issues about the extent to which PROs can accurately capture patient experiences and assess psychosocial and environmental factors that influence communication with clinicians and eventual outcomes. We end with comments about the intersection of PROs and bioethics, noting contributions that PROs may make to beneficence, patient autonomy, and distributive justice.Keywords
This publication has 35 references indexed in Scilit:
- Applying Quality-of-Life Data Formally and Systematically Into Clinical PracticeMayo Clinic Proceedings, 2007
- The Patient-Reported Outcomes Measurement Information System (PROMIS)Medical Care, 2007
- Measuring Performance in Primary Care: What Patient Outcome Indicators Do Physicians Value?The Journal of the American Board of Family Medicine, 2007
- Measuring Quality of Life in Routine Oncology Practice Improves Communication and Patient Well-Being: A Randomized Controlled TrialJournal of Clinical Oncology, 2004
- Applications of Health Status Assessment Measures in Clinical PracticeMedical Care, 1992
- The impact of administration mode on response effects in survey measurementApplied Cognitive Psychology, 1991
- Patient Power in Doctor-Patient Communication: What Do We Know?Health Communication, 1990
- Conceptual and methodological problems in research on the quality of life in clinical medicineSocial Science & Medicine, 1989
- Advances in Health Status AssessmentMedical Care, 1989
- Advances in the Measurement of Functional Status: Construction of Aggregate IndexesMedical Care, 1981