Patterns of Information-Seeking for Cancer on the Internet: An Analysis of Real World Data
Open Access
- 21 September 2012
- journal article
- research article
- Published by Public Library of Science (PLoS) in PLOS ONE
- Vol. 7 (9), e45921
- https://doi.org/10.1371/journal.pone.0045921
Abstract
Although traditionally the primary information sources for cancer patients have been the treating medical team, patients and their relatives increasingly turn to the Internet, though this source may be misleading and confusing. We assess Internet searching patterns to understand the information needs of cancer patients and their acquaintances, as well as to discern their underlying psychological states. We screened 232,681 anonymous users who initiated cancer-specific queries on the Yahoo Web search engine over three months, and selected for study users with high levels of interest in this topic. Searches were partitioned by expected survival for the disease being searched. We compared the search patterns of anonymous users and their contacts. Users seeking information on aggressive malignancies exhibited shorter search periods, focusing on disease- and treatment-related information. Users seeking knowledge regarding more indolent tumors searched for longer periods, alternated between different subjects, and demonstrated a high interest in topics such as support groups. Acquaintances searched for longer periods than the proband user when seeking information on aggressive (compared to indolent) cancers. Information needs can be modeled as transitioning between five discrete states, each with a unique signature representing the type of information of interest to the user. Thus, early phases of information-seeking for cancer follow a specific dynamic pattern. Areas of interest are disease dependent and vary between probands and their contacts. These patterns can be used by physicians and medical Web site authors to tailor information to the needs of patients and family members.This publication has 28 references indexed in Scilit:
- Longitudinal Perceptions of Prognosis and Goals of Therapy in Patients With Metastatic Non–Small-Cell Lung Cancer: Results of a Randomized Study of Early Palliative CareJournal of Clinical Oncology, 2011
- Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithmNature Biotechnology, 2011
- Interest in Internet Lung Cancer Support Among Rural Cardiothoracic PatientsJournal of Surgical Research, 2010
- How many cigarettes did you smoke? Assessing cigarette consumption by global report, time-line follow-back, and ecological momentary assessment.Health Psychology, 2009
- Detecting influenza epidemics using search engine query dataNature, 2009
- Cancer patients' decisions about discussing Internet information with their doctorsPsycho‐Oncology, 2009
- Conducting a Randomized Clinical Trial of an Psychological Intervention for Parents/Caregivers of Children with Cancer Shortly after DiagnosisJournal of Pediatric Psychology, 2008
- Optimistic expectations and survival after hematopoietic stem cell transplantationTransplantation and Cellular Therapy, 2003
- The dynamics of change: Cancer patients' preferences for information, involvement and supportAnnals of Oncology, 1997
- ArroganceThe New England Journal of Medicine, 1980