Refine Search

New Search

Results: 9

(searched for: doi:10.1542/peds.2019-2241)
Save to Scifeed
Page of 1
Articles per Page
by
Show export options
  Select all
, Lindsay Partin, Anna Revette, Joanne Wolfe, Danielle D. DeCourcey
Journal of Pain and Symptom Management; doi:10.1016/j.jpainsymman.2021.03.006

The publisher has not yet granted permission to display this abstract.
, Amy Jeppesen, Leah Peters, Taryn Schuelke, Nick Ryan King Magdoza, Joy Hesselgrave, Laura Loftis
Journal of Pain and Symptom Management; doi:10.1016/j.jpainsymman.2021.04.006

The publisher has not yet granted permission to display this abstract.
Simone Keller
Published: 4 March 2021
intensiv, Volume 29, pp 99-106; doi:10.1055/a-1338-8080

The publisher has not yet granted permission to display this abstract.
Danielle D. Decourcey, Lindsay Partin, Anna Revette, Rachelle Bernacki, Joanne Wolfe
Published: 1 February 2021
The Journal of Pediatrics, Volume 229, pp 247-258.e8; doi:10.1016/j.jpeds.2020.09.030

The publisher has not yet granted permission to display this abstract.
Alexander F. Glick, Michael Goonan, Chan Kim, Diana Sandmeyer, Kevin Londoño, Gabrielle Gold-Von Simson
Hospital Pediatrics, Volume 11, pp 61-70; doi:10.1542/hpeds.2020-000596

The publisher has not yet granted permission to display this abstract.
, Anna Revette, Abby R. Rosenberg, Danielle Decourcey
Journal of Pain and Symptom Management, Volume 60, pp 1154-1162.e1; doi:10.1016/j.jpainsymman.2020.06.035

The publisher has not yet granted permission to display this abstract.
Published: 8 October 2020
European Journal of Pediatrics, Volume 180, pp 949-957; doi:10.1007/s00431-020-03824-z

Abstract:
Preparing for future scenarios in pediatric palliative care is perceived as complex and challenging by both families and healthcare professionals. This interpretative qualitative study using thematic analysis aims to explore how parents and healthcare professionals anticipate the future of the child and family in pediatric palliative care. Single and repeated interviews were undertaken with 42 parents and 35 healthcare professionals of 24 children, receiving palliative care. Anticipating the future was seen in three forms: goal-directed conversations, anticipated care, and guidance on the job. Goal-directed conversations were initiated by either parents or healthcare professionals to ensure others could align with their perspective regarding the future. Anticipated care meant healthcare professionals or parents organized practical care arrangements for future scenarios with or without informing each other. Guidance on the job was a form of short-term anticipation, whereby healthcare professionals guide parents ad hoc through difficult situations. Conclusion: Anticipating the future of the child and family is mainly focused on achievement of individual care goals of both families and healthcare professionals, practical arrangements in advance, and short-term anticipation when a child deteriorates. A more open approach early in disease trajectories exploring perspectives on the future could allow parents to anticipate more gradually and to integrate their preferences into the care of their child. What is Known: • Anticipating the future in pediatric palliative care occurs infrequently and too late. What is New: • Healthcare professionals and parents use different strategies to anticipate the future of children receiving palliative care, both intentionally and unwittingly. Strategies to anticipate the future are goal-directed conversations, anticipated care, and guidance on the job. • Parents and healthcare professionals are engaged to a limited extent in ongoing explorative conversations that support shared decision-making regarding future care and treatment.
Kimberly J. Conkol, Angela Martinez-Strengel, Ryan J. Coller, David A. Bergman, Ellen-Marie Whelan
Hospital Pediatrics, Volume 10, pp 694-701; doi:10.1542/hpeds.2020-0069

The publisher has not yet granted permission to display this abstract.
, Clara Moore, Madison Beatty, Eyal Cohen, Adam Rapoport, Jonathan Hellmann, Kathy Netten, Reshma Amin, Julia Orkin
JAMA Network Open, Volume 3; doi:10.1001/jamanetworkopen.2020.10337

Page of 1
Articles per Page
by
Show export options
  Select all
Back to Top Top