New Approach for Collecting Cancer Patients’ Views and Preferences Through Medical Staff
Open Access
- 1 February 2021
- journal article
- research article
- Published by Taylor & Francis Ltd in Patient Preference and Adherence
- Vol. ume 15, 375-385
- https://doi.org/10.2147/ppa.s292239
Abstract
Purpose: It is crucial for health professionals to understand patients’ and families’ views and preferences (PVPs) to enhance their adherence to treatments and subsequent satisfaction. Regularly and consistently collecting comprehensive information on the needs and concerns of patients/families and utilizing the information is vital for improving clinical practice and the healthcare environment. As an initial approach, this study aimed to develop a new system for appropriately collecting PVPs regarding cancer from nationwide medical staff and consider the potential utilization of PVPs in clinical practice. Methods: Web-based anonymous surveys were conducted with medical staff in nationwide cancer care hospitals in Japan. The surveys queried the questions, values, desires, and experiences expressed by cancer patients or their families on five topics, namely two cancer sites (colorectal and esophageal cancers) and three symptoms and signs (lymphedema, urinary symptoms, and tingling/numbness/pain) within the past year. The PVPs were compared to the five topics and staff medical specialties, and those on tingling/numbness/pain were analyzed qualitatively. Results: Among the 904 medical staff who responded to this survey, the PVPs encountered by the staff differed according to the topic and staff medical specialty. Tingling/numbness/pain was the most frequently encountered symptom, and urinary symptoms were the least encountered. Only half or fewer of the medical staff had information available regarding urinary symptoms and tingling/numbness/pain. Further, qualitative content analysis of the expressed PVPs regarding tingling/numbness/pain raised clinical questions on this topic that led to the construction of a “Questions & Answers” section on a public website in Japan. Conclusion: This study suggests that collecting PVPs through nationwide cancer-related medical staff might be an efficient way to understand the specific requirements of patients/families. It would also be possible to document PVP trends according to changes in the environments of patients/families by nationwide, consistent, and continuous PVP collection.Keywords
This publication has 35 references indexed in Scilit:
- Impact of Survivorship Care Plans and Planning on Breast, Colon, and Prostate Cancer Survivors in a Community Oncology PracticeJournal of Cancer Education, 2020
- Life values of elderly people suffering from incurable cancer: A literature reviewPatient Education and Counseling, 2017
- The Impact of Exercise on Cancer Mortality, Recurrence, and Treatment-Related Adverse EffectsEpidemiologic Reviews, 2017
- Adherence, satisfaction and preferences for treatment in patients with psoriasis in the European Union: a systematic review of the literaturePatient Preference and Adherence, 2016
- Patient knowledge and information-seeking about personalized cancer therapyInternational Journal of Medical Informatics, 2016
- A literature review to explore the link between treatment satisfaction and adherence, compliance, and persistencePatient Preference and Adherence, 2012
- It's Not over When it's Over: Long-Term Symptoms in Cancer Survivors—A Systematic ReviewThe International Journal of Psychiatry in Medicine, 2010
- What are the unmet supportive care needs of people with cancer? A systematic reviewSupportive Care in Cancer, 2009
- Physical and psychological long-term and late effects of cancerCancer, 2008
- Systematic Review of the Effects of Shared Decision-Making on Patient Satisfaction, Treatment Adherence and Health StatusPsychotherapy and Psychosomatics, 2008