Translation and cultural adaptation of the Integrated Palliative care Outcome Scale including cognitive interviewing with patients and staff
Open Access
- 11 September 2017
- journal article
- research article
- Published by Springer Science and Business Media LLC in BMC Palliative Care
- Vol. 16 (1), 1-10
- https://doi.org/10.1186/s12904-017-0232-x
Abstract
To expand our clinical and scientific knowledge about holistic outcomes within palliative care, there is a need for agreed-upon patient-reported outcome measures. These patient-reported outcome measures then require translation and cultural adaptation, either from country-specific languages to English, or the other way around. The aim of this study was to translate and cross-culturally adapt the Integrated Palliative care Outcome Scale (IPOS) to the Swedish care context. Swedish versions of IPOS Patient and IPOS Staff were developed and culturally adapted using recommended guidelines including cognitive interviews with patients (n = 13) and staff (n = 15) from different care contexts including general and specialised palliative care. The comprehension and judgement difficulties identified in the pre-final patient and staff versions were successfully solved during the cognitive interviewing process. IPOS was well accepted by both patients and staff, none of the questions were experienced as inappropriate, and all questions were judged important. In this study, we translated and culturally adapted the patient and staff versions of IPOS, and demonstrated face and content validity and acceptability of the scale through cognitive interviewing with patients and staff within residential care facility, surgical and specialised palliative home care units. Cognitive interviewing in parallel with patients and staff in rounds, with tentative analysis in between, was a suitable method for identifying and solving challenges with comprehension and evaluation in the pre-final version of IPOS. The Swedish IPOS is now available for use in a variety of clinical care settings.Funding Information
- Mats Paulsson Foundation for Research, Innovation And Societal Development
- Högskolan Kristianstad
This publication has 18 references indexed in Scilit:
- Evaluating complex interventions in End of Life Care: the MORECare Statement on good practice generated by a synthesis of transparent expert consultations and systematic reviewsBMC Medicine, 2013
- How do nurses assess quality of life of cancer patients in oncology wards and palliative settings?European Journal of Oncology Nursing, 2012
- Living with Bodily Changes in Hormone-Refractory Prostate CancerSeminars in Oncology Nursing, 2011
- The Edmonton Symptom Assessment System, a proposed tool for distress screening in cancer patients: development and refinementPsycho‐Oncology, 2011
- Generalization in quantitative and qualitative research: Myths and strategiesInternational Journal of Nursing Studies, 2010
- The Assessment of Quality of life at the End of Life (AQEL) questionnaire: a brief but comprehensive instrument for use in patients with cancer in palliative careQuality of Life Research, 2010
- Nurses’ experiences of clinical use of a quality of life instrument in palliative careContemporary Nurse, 2007
- Research Synthesis: The Practice of Cognitive InterviewingPublic Opinion Quarterly, 2007
- Symptom Distress and Quality-of-Life Assessment at the End of Life: The Role of Proxy ResponseJournal of Pain and Symptom Management, 2006
- Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelinesJournal of Clinical Epidemiology, 1993