Quality of Life Among Caregivers of a Vulnerable Population Living with HIV: Caregiving and Relationship Factors
- 26 July 2020
- journal article
- research article
- Published by Springer Science and Business Media LLC in AIDS and Behavior
- Vol. 25 (2), 360-376
- https://doi.org/10.1007/s10461-020-02975-2
Abstract
Literature on health-related quality of life (HRQOL) has focused on people living with chronic conditions, with less attention given to HRQOL among informal caregivers. We used cross-sectional dyadic data from both care recipients (CR) living with HIV and the person they identified as their primary informal (unpaid) caregiver (CG) to identify psychosocial and caregiving relationship factors (including, CG role ambivalence and caregiving-related stress) associated with CG HRQOL. We conducted confirmatory factor analysis and structural equation modeling testing. The results highlight interdependent effects of the CG-CR relationship and reveal pathways whereby relationship interactions positively and negatively impact CGs’ HRQOL. Affiliative stigma, CG-CR communication, CRs’ reciprocity of support and other psychosocial factors indirectly and differentially affected physical and mental HRQOL through effects on secondary stress and role ambivalence. Dyad-focused intervention on interpersonal communication and support exchange may improve HRQOL and resilience of CGs of vulnerable people living with HIV.Keywords
Funding Information
- Foundation for the National Institutes of Health (R01 DA019413, R01 NR14050-01, 1P30 AI094189)
- Johns Hopkins University
This publication has 73 references indexed in Scilit:
- Caregiving Strain and All-Cause Mortality: Evidence From the REGARDS StudyThe Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 2012
- Interventions for families affected by HIVTranslational Behavioral Medicine, 2011
- Informal Care and Reciprocity of Support are Associated with HAART Adherence Among Men in Baltimore, MD, USAAIDS and Behavior, 2010
- Patients' Perspectives on Informal Caregiver Involvement in HIV Health Care AppointmentsAIDS Patient Care and STDs, 2009
- Impact of Disclosure of HIV Infection on Health-Related Quality of Life Among Children and Adolescents With HIV InfectionPEDIATRICS, 2009
- Health-Related Quality of Life in HIV-Infected Patients: The Role of Substance UseAIDS Patient Care and STDs, 2008
- Failed reciprocity in close social relationships and health: Findings from the Whitehall II studyJournal of Psychosomatic Research, 2007
- Disentangling the stigma of HIV/AIDS from the stigmas of drugs use, commercial sex and commercial blood donation – a factorial survey of medical students in ChinaBMC Public Health, 2007
- Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternativesStructural Equation Modeling: A Multidisciplinary Journal, 1999
- Assessment of Older People: Self-Maintaining and Instrumental Activities of Daily LivingThe Gerontologist, 1969