Introduction to Endo-ERN–scope and mission
Open Access
- 15 January 2021
- journal article
- editorial
- Published by Springer Science and Business Media LLC in Endocrine
- Vol. 71 (3), 537-538
- https://doi.org/10.1007/s12020-020-02602-z
Abstract
The official installation of the European Reference Networks in 2017 formed the foundation to improve quality and safety and access to highly specialized health care across the EU for patients affected by rare or low prevalence and complex conditions. The European Reference Network on Rare Endocrine Conditions (Endo-ERN) covers specific expertise from birth to senescence with a specific governance structure characterized by both a pediatric and an adult chair, and equal responsibilities for patient representatives and health care providers. The introduction on the scope and mission of Endo describes the complexity of the Endo-ERN mission and will thrive toward the ultimate aim and mission of the network of reducing health care inequalities across Europe. Specific knowledge and medical expertise of the existing rare endocrine condition is urgently needed, and therefore, raising awareness for Rare Disease Day from the Endo-ERN perspective is imperative.This publication has 2 references indexed in Scilit:
- An overview of clinical activities in Endo-ERN: the need for alignment of future network criteriaActa Endocrinologica, 2020
- Will European Reference Networks herald a new era of care for patients with rare and complex diseases?European Journal of Public Health, 2015