Documenting Patient Data in Psoriasis Clinical Practice—Patient Focus Groups Supporting Psoriasis Experts’ Decision-making
Open Access
- 1 March 2021
- journal article
- research article
- Published by Taylor & Francis Ltd in Patient Preference and Adherence
- Vol. ume 15, 549-557
- https://doi.org/10.2147/ppa.s297569
Abstract
Background and Objectives: This article presents patients’ attitudes about documenting patient data and outcome measures in psoriasis clinical practice to support a Delphi approach of psoriasis experts to develop a standard data set. Patients and Methods: We conducted three focus groups with 14 patients in a German outpatient unit for psoriasis. The focus was to explore reasons for and against the documentation of single variables concerning personal, anamnesis, clinical, patient-reported outcomes, and other data. Results: The patients mainly discussed if a variable has an impact on the disease or treatment decision, or if there might be a practical value from experiences with treatments when documented. In addition, in their point of view, patient-reported outcome data are important to document as it enables physicians to learn about a patient’s subjective burden of disease. Patient education and the involvement of other physicians in the treatment process also emerged as relevant aspects. Conclusion: The results help to understand patients’ preferences on documenting patient data and their idea of an exhaustive doctor–patient consultation to improve doctor–patient communication, disease monitoring, and quality of care.Keywords
This publication has 13 references indexed in Scilit:
- Shared Decision Making in Psoriasis: A Systematic Review of Quantitative and Qualitative StudiesAmerican Journal of Clinical Dermatology, 2018
- Relative efficacy of systemic treatments for atopic dermatitisJournal of the American Academy of Dermatology, 2018
- Identifying a Core Domain Set to Assess Psoriasis in Clinical TrialsJAMA Dermatology, 2018
- How to weight patient-relevant treatment goals for assessing treatment benefit in psoriasis: preference elicitation methods vs. rating scalesArchiv für dermatologische Forschung, 2018
- Patient-relevant treatment goals in psoriasisArchiv für dermatologische Forschung, 2015
- The Harmonizing Outcome Measures for Eczema (HOME) Roadmap: A Methodological Framework to Develop Core Sets of Outcome Measurements in DermatologyJournal of Investigative Dermatology, 2015
- Dimensions of patient needs in dermatology: subscales of the patient benefit indexArchiv für dermatologische Forschung, 2010
- Spotlight on focus groups.2009
- The Psychosocial Burden of PsoriasisAmerican Journal of Clinical Dermatology, 2005
- Psoriasis Is Common, Carries a Substantial Burden Even When Not Extensive, and Is Associated with Widespread Treatment DissatisfactionJournal of Investigative Dermatology Symposium Proceedings, 2004