Storytelling to Inspire Dialysis Patients to Learn about Living Donor Kidney Transplant
- 13 January 2021
- journal article
- review article
- Published by S. Karger AG in Blood Purification
- Vol. 50 (4-5), 655-661
- https://doi.org/10.1159/000512651
Abstract
Background: Policy changes including the Advancing American Kidney Health initiative and CMS’s ESRD Quality Incentive Program recommend increasing educational initiatives within dialysis centers to increase living kidney donor transplant (LDKT) rates. LDKT education can be challenging in dialysis centers due to limited provider time to educate, patient fears or reluctance to learn about LDKT, and difficulty educating potential living donors. New educational innovations that increase dialysis patient curiosity about pursuing LDKT are needed. Summary: Digital first-person storytelling, or the sharing of narratives by individuals in their own words, is a culturally competent, health literate, patient-driven approach to expanding patient understanding about LDKT that can supplement traditional educational strategies without additional burden for dialysis providers. The Living Donation Storytelling Project is an online digital library of over 150 video stories told by diverse kidney recipients, donors, those in search of a donor, and their family/friends. By honestly discussing how they overcame fears and challenges related to LDKT, these stories address sensitive topics that can be hard for providers to introduce by using easily accessible learning methodology that may better connect with racial/ethnic minorities, scared patients, and patients facing health literacy challenges. Key Messages: Supplementing traditional educational approaches with digital storytelling may help overcome time limitations in educating for busy providers, boost providers’ own knowledge about LDKT, serve as a free supplemental resource for patients, reduce fears and increase self-efficacy about transplant, help more patients to share about transplant with their social networks, and ultimately increase LDKT rates.Keywords
This publication has 25 references indexed in Scilit:
- Mistrust, Misperceptions, and Miscommunication: A Qualitative Study of Preferences About Kidney Transplantation Among African AmericansTransplantation Proceedings, 2015
- Making House Calls Increases Living Donor Inquiries and Evaluations for Blacks on the Kidney Transplant Waiting ListTransplantation, 2014
- Health Literacy of Living Kidney Donors and Kidney Transplant RecipientsTransplantation, 2014
- Culturally Competent Transplant Program Improves Hispanics' Knowledge and Attitudes about Live Kidney Donation and TransplantProgress in Transplantation, 2014
- Measuring kidney patients’ motivation to pursue living donor kidney transplant: Development of Stage of Change, Decisional Balance and Self-Efficacy measuresJournal of Health Psychology, 2013
- Prevalence and associations of limited health literacy in chronic kidney disease: a systematic reviewNephrology Dialysis Transplantation, 2012
- Disparities in Provision of Transplant Education by Profit Status of the Dialysis CenterAmerican Journal of Transplantation, 2012
- African American and Non-African American Patients’ and Families’ Decision Making About Renal Replacement TherapiesQualitative Health Research, 2012
- Organ donation, transplantation and religionNephrology Dialysis Transplantation, 2010
- Effect of the Ownership of Dialysis Facilities on Patients' Survival and Referral for TransplantationThe New England Journal of Medicine, 1999