Community Perception about Children with Hydrocephalus in Lagos State, Nigeria

Abstract

This study which was anchored in Health Belief Model and Functionalism investigated the perceived cause of hydrocephalus and the influence of socio-demographic characteristics on such perception. Data were collected through questionnaire survey, Focus group discussions (FDGs), In-depth Interviews (IDIs) and Key Informant Interviews (KIIs). Results indicate that perception about the cause of the condition included that it is a kind of punishment for sin (50%), spiritual attacks (27.3%), genetic (13.7%) and infection (9%). Community perception was higher especially with respondents age 42-47 (OR=1.32), female (OR=1.47), tertiary education (OR=0.69), punishment for sin (OR=0.61), spiritual attacks (OR=0.26) and infection (OR=0.48) than genetic factor. Community belief that hydrocephalus does not require medical attention negatively affected seeking medical help early. Other limiting factors were fear of surgical complications, inability of mothers to take responsibility; poor family social supports system and stigmatisation. There is need for stakeholders and agencies to enlighten community members on hydrocephalus and provide social support for children with the condition.