Screening for pediatric parenting stress in parents of youth with differences of sex development.
- 1 September 2022
- journal article
- research article
- Published by American Psychological Association (APA) in Clinical Practice in Pediatric Psychology
- Vol. 10 (3), 241-250
- https://doi.org/10.1037/cpp0000409
Abstract
Objective: Parents of children with differences of sex development (DSD) may be at risk for general parenting stress, but little is known about their experience of stress specific to caring for a child with a chronic illness, known as pediatric parenting stress. This study describes pediatric parenting stress in parents of youth with DSD by examining (a) differences in stress levels between mothers and fathers, and (b) associations with demographic and medical characteristics. Methods: Participants included parents of 137 youth ages less than 1 month to 20 years attending an interdisciplinary DSD Clinic [age M(SD) = 6.91(6.50); most common diagnosis: 46, XY DSD of unknown etiology]. Parents completed the Pediatric Inventory for Parents (PIP; Streisand et al., 2001) during clinic, and demographic and medical information was collected via chart review. Results: Mothers and fathers reported similar levels of pediatric parenting stress. Parents of youth who were non-White, had public insurance, or had sex chromosome DSD reported more pediatric parenting stress across several subscales. Conclusions: Certain parents of youth with DSD are at higher risk for pediatric parenting stress. Routine screening for illness-specific parenting stress may identify families who require additional evaluation to support adaptive coping and identify specific targets for intervention.Keywords
Funding Information
- National Institutes of Health (UL1TR001422)
This publication has 23 references indexed in Scilit:
- Parenting Stress Among Caregivers of Children With Chronic Illness: A Systematic ReviewJournal of Pediatric Psychology, 2013
- Paternal involvement in pediatric Type 1 diabetes: Fathers' and mothers' psychological functioning and disease management.Families, Systems, & Health, 2012
- Differences in adjustment by child developmental stage among caregivers of children with disorders of sex developmentInternational Journal of Pediatric Endocrinology, 2011
- Children with disorders of sex development: A qualitative study of early parental experienceInternational Journal of Pediatric Endocrinology, 2011
- Paediatric parenting stress in inflammatory bowel disease: application of the Pediatric Inventory for ParentsChild: Care, Health and Development, 2011
- Primary Caregivers of Children Affected by Disorders of Sex Development: Mental Health and Caregiver Characteristics in the Context of Genital Ambiguity and GenitoplastyInternational Journal of Pediatric Endocrinology, 2010
- Stress and Coping of Parents of Young Children Diagnosed With Bladder ExstrophyJournal of Urology, 2009
- Evidence-based Assessment in Pediatric Psychology: Family MeasuresJournal of Pediatric Psychology, 2007
- Pediatric Parenting Stress Among Parents of Children with Type 1 Diabetes: The Role of Self-Efficacy, Responsibility, and FearJournal of Pediatric Psychology, 2005
- Missing data: Our view of the state of the art.Psychological Methods, 2002