Examining parent and clinician views of a hospital-based pediatric neuropsychological service: a Canadian perspective
- 30 June 2021
- journal article
- research article
- Published by Taylor & Francis Ltd in Child Neuropsychology
- Vol. 28 (1), 61-81
- https://doi.org/10.1080/09297049.2021.1945567
Abstract
Understanding how pediatric neuropsychological evaluations support families and the child’s medical team is an important component of ensuring evidence-based care. For the first time within a Canadian context, we investigated the impact of neuropsychological assessments on parent knowledge, advocacy, and stress and the role of socioeconomic factors in parents’ perceptions of the assessment. Responses from referring clinicians were also examined. As part of a hospital quality improvement project, 91 parents of children between the ages of 3 and 17 years (M = 8y7m; SD = 4y1m) and 45 clinician consumers (clinical staff who use neuropsychological services) completed one of two online questionnaires in English: Parent Overall Assessment of Supports and Testing, or Clinician Overall Assessment of Supports and Testing. Most parents indicated the neuropsychological evaluation promoted understanding of their child’s cognitive profile and improved their ability to support their child at home and at school or in the community. Families characterized as being at higher social risk indicated that the evaluation led to more changes in how they approached their child at home than families with lower social risk status. Referring clinicians indicated neuropsychological reports were effective in communicating findings to them and patients/families. The most valuable sections of the report according to referring clinicians included the diagnosis/impression and recommendations sections. Parents and referral providers reported many benefits from the neuropsychological evaluation but also identified areas for service delivery improvement. Parent perceptions varied based on family and socio environmental factors, offering important targets for future research and clinical consideration.Keywords
This publication has 32 references indexed in Scilit:
- Patient and service user engagement in research: a systematic review and synthesized frameworkHealth Expectations, 2013
- Parent and child experiences of neuropsychological assessment as a function of child feedback by individualized fableChild Neuropsychology, 2012
- Research electronic data capture (REDCap)—A metadata-driven methodology and workflow process for providing translational research informatics supportJournal of Biomedical Informatics, 2008
- Patient and Family Perceptions of the Neuropsychological Evaluation: How Are We Doing?The Clinical Neuropsychologist, 2007
- A national survey of physicians’ use of and satisfaction with neuropsychological servicesArchives of Clinical Neuropsychology, 2006
- Referring Physicians' Perceptions of the Neuropsychological Evaluation: How are we Doing?The Clinical Neuropsychologist, 2002
- Pediatric Neuropsychological Reports: Do They Really Have To Be So Long?Child Neuropsychology, 1999
- Parent Perceptions About the Process and Outcomes of Child Neuropsychological AssessmentApplied Neuropsychology, 1998
- Encounters with Anna Thompson: The consumer's experience of neuropsychological assessmentThe Clinical Neuropsychologist, 1994
- Assessment of client/patient satisfaction: Development of a general scaleEvaluation and Program Planning, 1979