Simultaneous Home-Based Pediatric Hospice and Palliative Care: Characterizing the Population
- 1 April 2023
- journal article
- research article
- Published by Mary Ann Liebert Inc in Journal of Palliative Medicine
- Vol. 26 (4), 554-558
- https://doi.org/10.1089/jpm.2022.0477
Abstract
Background: Children and adolescents with serious conditions may benefit from simultaneous hospice and palliative care. Although the Affordable Care Act covers concurrent care, uptake has been limited. Limited descriptive data exist on receiving simultaneous community hospice and pediatric palliative care. Objective: Characterize a population of children and adolescents receiving simultaneous pediatric home-based hospice and palliative care (HBHPC). Design/Setting/Subjects:Post hoc analysis of retrospective study of N = 31 patients enrolled in pediatric HBHPC, with comparison to larger two-site sample receiving either hospice or palliative care at home. Measurement: Demographic and clinical data extracted from the electronic medical record. Results: Data characterizing the population receiving simultaneous care are presented; compared with those receiving either hospice or palliative care at home, the only significant differences were a greater proportion of decedent children and greater billable hours. Conclusions: Findings support the lack of meaningful distinction between hospice and palliative care in pediatrics.Keywords
This publication has 16 references indexed in Scilit:
- Challenges and Priorities for Pediatric Palliative Care Research in the U.S. and Similar Practice Settings: Report From a Pediatric Palliative Care Research Network WorkshopJournal of Pain and Symptom Management, 2019
- Improving Home Hospice and Palliative Care PoliciesPEDIATRICS, 2019
- Costs of Care and Location of Death in Community-Based Pediatric Palliative CareJournal of Palliative Medicine, 2019
- Provision of Palliative and Hospice Care to Children in the Community: A Population Study of Hospice NursesJournal of Pain and Symptom Management, 2019
- Children Enrolled in Hospice Care Under Commercial Insurance: A Comparison of Different Age GroupsAmerican Journal of Hospice and Palliative Medicine®, 2018
- The ethics of concurrent care for children: A social justice perspectiveNursing Ethics, 2018
- Quality of paediatric hospice care for children with and without multiple complex chronic conditionsInternational Journal of Palliative Nursing, 2017
- Hospice Care for Children With CancerJournal of Pediatric Hematology/Oncology, 2015
- Comparison of Pediatric and Adult Hospice Patients Using Electronic Medical Record Data from Nine Hospices in the United States, 2008–2012Journal of Palliative Medicine, 2015
- Research electronic data capture (REDCap)—A metadata-driven methodology and workflow process for providing translational research informatics supportJournal of Biomedical Informatics, 2008