Murru Minya–informing the development of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research: a protocol for a national mixed-methods study
Open Access
- 10 February 2023
- Vol. 13 (2), e067054
- https://doi.org/10.1136/bmjopen-2022-067054
Abstract
Introduction Conducting ethical and high-quality health research is crucial for informing public health policy and service delivery to reduce the high and inequitable burden of disease experienced by Aboriginal and Torres Strait Islander people. Ethical guidelines and principles specifically for health research with Aboriginal and Torres Strait Islander people have been developed for use since 1987. However, there has been limited examination of how these are being applied to the conduct of research. Methods and analysis Murru Minya will be a large-scale national study to examine the implementation of ethical processes in Aboriginal and Torres Strait Islander health research. A mixed-methods design will be used in four baarra (steps). The first three baarra will collect knowledge, experiences and wisdom from three key groups: Aboriginal and Torres Strait Islander communities, research academics, and Human Research Ethics Committees using online surveys, yarning, and semistructured interviews. This knowledge will inform the final baarra of developing a set of practical recommendations to support ethical conduct in Aboriginal and Torres Strait Islander health research into the future. Ethics and dissemination Ethical approval for this research project has been granted by National, State and Territory Human Research Ethics Committees. This research has been developed in collaboration with Aboriginal and Torres Strait Islander researchers, Aboriginal Community Controlled Health Organisation representatives, Aboriginal community members, the National Health Leadership Forum, and Aboriginal and Torres Strait Islander research team. The knowledge translation plan will be integrated and revised throughout the project as partnerships and engagement with Aboriginal and Torres Strait Islander communities continue. All findings will be shared with peak Aboriginal research bodies and Aboriginal and Torres Strait Islander communities in ways that are meaningful to them.Funding Information
- University of New South Wales (N/A, Scientia Program)
- Australian Rotary Health (G1801108)
- National Health and Medical Research Council (Early Career Fellowship (#1158670), Emerging Leadership Fellowship (#1174758), Ideas Grant (APP2001767), Senior Research Fellowship (GNT1137563))
This publication has 28 references indexed in Scilit:
- A Journey Toward Cultural CompetenceJournal of Transcultural Nursing, 2016
- “It puts a human face on the researched” – A qualitative evaluation of an Indigenous health research governance modelAustralian and New Zealand Journal of Public Health, 2016
- No one’s discussing the elephant in the room: contemplating questions of research impact and benefit in Aboriginal and Torres Strait Islander Australian health researchBMC Public Health, 2015
- The oral health care experiences of NSW Aboriginal Community Controlled Health ServicesAustralian and New Zealand Journal of Public Health, 2015
- A Strategy for Translating Evidence Into Policy and Practice to Close the Gap - Developing Essential Service Standards for Aboriginal and Torres Strait Islander Cardiovascular CareHeart, Lung and Circulation, 2015
- Coming to an ethics of research practice in a remote Aboriginal Australian communityContemporary Nurse, 2013
- Indigenous participation in an informal national Indigenous health policy networkAustralian Health Review, 2011
- Rethinking the origins ofterra nulliusAustralian Historical Studies, 2001
- Internationalization of an Indigenous Anticolonial Cultural Critique of Research Methodologies: A Guide to Indigenist Research Methodology and Its PrinciplesWicazo Sa Review, 1999
- The spinal curvature in an aboriginal AustralianProceedings of the Royal Society of London, 1889