The impact of COVID-19 on palliative care workers across the world: A qualitative analysis of responses to open-ended questions
- 2 March 2021
- journal article
- research article
- Published by Cambridge University Press (CUP) in Palliative & Supportive Care
- Vol. 19 (2), 187-192
- https://doi.org/10.1017/s1478951521000298
Abstract
Objective With over two million deaths and almost 100 million confirmed cases, the COVID-19 pandemic has caused a “tsunami of suffering.” Health care workers, including palliative care workers, have been severely impacted. This study explores how the COVID-19 pandemic has impacted palliative care workers around the world and describes the coping strategies they have adopted to face their specific situation. Method We conducted a qualitative analysis of written, unstructured comments provided by respondents to a survey of IAHPC members between May and June 2020. Free text was exported to MAX QDA, and a thematic analysis was performed by reading the comments and developing a coding frame. Results Seventy-seven palliative care workers from 41 countries submitted at least one written comment, resulting in a data corpus of 10,694 words and a total of 374 coded comments. Eight main themes are emerged from the analysis: palliative care development, workforce impact, work reorganization, palliative care reconceptualization, economic and financial impacts, increased risk, emotional impact, and coping strategies. Significance of results The pandemic has had a huge impact on palliative care workers including their ability to work and their financial status. It has generated increased workloads and placed them in vulnerable positions that affect their emotional well-being, resulting in distress and burnout. Counseling and support networks provide important resilience-building buffers. Coping strategies such as team and family support are important factors in workers’ capacity to adapt and respond. The pandemic is changing the concept and praxis of palliative care. Government officials, academia, providers, and affected populations need to work together to develop, and implement steps to ensure palliative care integration into response preparedness plans so as not to leave anyone behind, including health workers.Keywords
This publication has 20 references indexed in Scilit:
- Pandemic palliative care: beyond ventilators and saving livesCMAJ : Canadian Medical Association Journal, 2020
- Mapping Levels of Palliative Care Development in 198 Countries: The Situation in 2017Journal of Pain and Symptom Management, 2019
- Barriers to Access to Palliative CarePalliative Care: Research and Treatment, 2017
- Existential distress among healthcare providers caring for patients at the end of lifeCurrent Opinion in Supportive & Palliative Care, 2015
- A matter of definition – key elements identified in a discourse analysis of definitions of palliative carePalliative Medicine, 2008
- Using thematic analysis in psychologyQualitative Research in Psychology, 2006
- "Any other comments?" Open questions on questionnaires – a bane or a bonus to research?BMC Medical Research Methodology, 2004
- Infrastructure for Reaching Disadvantaged Consumers: Telecommunications in Rural and Remote Nursing in AustraliaJournal of the American Medical Informatics Association, 1998
- Qualitative research methods in health technology assessment: a review of the literature.Health Technology Assessment, 1998
- Toward Integrating Qualitative and Quantitative Methods: An IntroductionHealth Education Quarterly, 1992