Evaluation of care burden and preparedness of caregivers who provide care to palliative care patients
- 31 March 2021
- journal article
- research article
- Published by Cambridge University Press (CUP) in Palliative & Supportive Care
- Vol. 20 (1), 30-37
- https://doi.org/10.1017/s1478951521000213
Abstract
Objective Caregivers have a great role in palliative care. Considering the difficult process of palliative care, the caregiver undertakes an extra burden with the responsibility of the patient. This study was carried out to evaluate the care burden and preparedness of caregivers who provide care for palliative care patients. Method This study was conducted in the palliative care unit of a state hospital in Turkey between January and May 2019. No sample was selected in the study, and the study was carried out with individuals who were hospitalized in the palliative care unit and who volunteered to participate in the study between the specified dates. The data were collected with Patient Relative Questionnaire Form, Burden Interview, and Preparedness for Caregiving Scale. Results The average Burden Interview score was found as 33.6, SD 13.03 in the study. Patient relatives perceived the patients they cared for as a burden at moderate levels. The Preparedness for Caregiving score average was found as 18.55, SD 6.83. It was found that patient relatives were moderately prepared to undertake the role of caregiver. It was found that care burden decreased as preparedness for caregiving increased and burden increased as preparedness for caregiving decreased (p = 0.001). Significance of results As a result of the study, it was found that caregivers of palliative patients had the moderate levels of care burden and preparedness for caregiving. It was found that as the preparedness levels of caregivers increased, their burdens decreased. Accordingly, it is important that nurses will plan nursing interventions by considering the factors that affect the care burden and preparedness of caregivers.Keywords
This publication has 31 references indexed in Scilit:
- Family Caregiver Burden, Skills Preparedness, and Quality of Life in Non-Small Cell Lung CancerOncology Nursing Forum, 2013
- Palliative Care and Death AnxietyPsikiyatride Güncel Yaklaşımlar, 2012
- Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: An exploratory comparative designInternational Journal of Nursing Studies, 2010
- Mutuality and Preparedness Moderate the Effects of Caregiving Demand on Cancer Family Caregiver OutcomesNursing Research, 2007
- Life satisfaction and distress in family caregivers as related to specific behavioural changes after traumatic brain injuryBrain Injury, 2005
- Determinants of Caregiving Burden and Quality of Life in Caregivers of Stroke PatientsStroke, 2005
- Family caregivers of older adults on home enteral nutrition have multiple unmet task-related training needs and low overall preparedness for caregivingJournal of the American Dietetic Association, 2004
- Effect of Caregiver Perception of Preparedness on Burden in an Oncology PopulationOncology Nursing Forum, 2002
- Relatives of the Impaired Elderly: Correlates of Feelings of BurdenThe Gerontologist, 1980