The three faces of eve: mothers’ lived experiences of caring for children with high-functioning autism during the school-leaving transition in Hong Kong
- 22 February 2023
- journal article
- research article
- Published by Taylor & Francis Ltd in Journal of Family Social Work
- Vol. 25 (2-3), 1-21
- https://doi.org/10.1080/10522158.2023.2170544
Abstract
This study aimed to explore the caregiving experiences of primary caregivers, mothers of children with high-functioning autism, during the transition of leaving school and sometimes starting work. In-depth interviews were conducted with nine caregiving mothers with high-functioning children with autism aged 16–27 years. Results revealed that caring for a high-functioning child with autism during their life transition includes three roles: social advocacy, caregiving life coach, and personal selfhood reexamination. Thus, a theoretical model of empowering these caregivers during the child’s school-to-work life transition can be established. With the empowerment strategies of strengthening multiple roles, findings allow practitioners and policymakers to reflect on the interventions supporting families in transitioning planning at different systematic levels, including the individual, the family, and the larger community.Keywords
Funding Information
- funding
This publication has 49 references indexed in Scilit:
- Seeing the Glass Half FullClinical Nurse Specialist, 2012
- Community-Based Vocational Instruction Using Videotaped Modeling for Young Adults With Autism Spectrum Disorders Performing in Air-Inflated MascotsFocus on Autism and Other Developmental Disabilities, 2010
- Empowerment, Predisposition to Resist Change, and Support for Organizational ChangeJournal of Leadership & Organizational Studies, 2010
- Family Support and Empowerment: Post Autism Diagnosis Support Group for ParentsSocial Work With Groups, 2010
- Daily Experiences Among Mothers of Adolescents and Adults with Autism Spectrum DisorderJournal of Autism and Developmental Disorders, 2009
- Rigour in qualitative research: mechanisms for controlNurse Researcher, 2009
- Transition From School to Adulthood for Youth With Autism Spectrum DisordersFocus on Autism and Other Developmental Disabilities, 2009
- Grounded Theory: An Exploration of Process and ProcedureQualitative Health Research, 2006
- The inclusion of bias in reflective and reflexive researchJournal of Research in Nursing, 2005
- The qualitative research audit trail: A complex collection of documentationResearch in Nursing & Health, 1993