Patterns of Health Service Use Among Young People With Cerebral Palsy in England
Open Access
- 12 May 2021
- journal article
- research article
- Published by Frontiers Media SA in Frontiers in Neurology
Abstract
Background: Although the provision of healthcare for people with cerebral palsy (CP) is typically focussed on childhood, many people with CP require access to services periodically throughout their life. Few studies have examined patterns of health service use among young people with CP in England. Understanding patterns of use may inform future service development. Objective: To describe patterns of visits to rehabilitation and medical professionals among ambulatory young people with CP living in England, and identify factors associated with service use. Methods: Sixty-two young people with CP aged 10–19 years [mean (SD) age 13.7 (2.5) years] in Gross Motor Function Classification System (GMFCS) levels I-III reported visits to a range of health professionals, hospital admissions and visits to the emergency department over a median duration of 34 weeks (min–max: 12–34 weeks). Negative binomial models were used to examine factors associated with number of visits. Results: Physiotherapists were the most commonly used professional, with 67.7% of participants visiting a physiotherapist at least once, followed by dentists (66.1%), general practitioners (48.4%), occupational therapists (40.3%) and orthopaedic surgeons (40.3%). Physiotherapists were also the most frequently visited professional with a total of 473 visits (13.3 visits per person-year). Speech and language therapists (5.0 visits per person-year), occupational therapists (4.5 visits per person-year) and nurses (4.3 per person-year) were the next most frequently visited professionals. Age, GMFCS level, and speech impairment were associated with rate of visits to a physiotherapist. Conclusions: The proportion of young people who visited medical and rehabilitation professionals during the study period varied considerably depending on the profession. Generally, the proportion of young people using services was low. In the context of limited resources, data on service use in combination with data on unmet need, may support the reorganisation of services to maximise benefits to young people with CP.Funding Information
- Action Medical Research
- Chartered Society of Physiotherapy Charitable Trust
This publication has 22 references indexed in Scilit:
- Utilization of Physical Therapy Services During Transition for
Young People With Cerebral Palsy: A Call for Improved Care Into AdulthoodPTJ: Physical Therapy & Rehabilitation Journal, 2018
- Are the health needs of young people with cerebral palsy met during transition from child to adult health care?Child: Care, Health and Development, 2018
- Therapy access among children with autism spectrum disorder, cerebral palsy, and attention‐deficit–hyperactivity disorder: a population‐based studyDevelopmental Medicine and Child Neurology, 2017
- Comparing emergency department presentations among children with cerebral palsy with general childhood presentations: a data linkage studyDevelopmental Medicine and Child Neurology, 2017
- Hospital admissions in children with cerebral palsy: a data linkage studyDevelopmental Medicine and Child Neurology, 2016
- “Thrust into adulthood”: Transition experiences of young adults with cerebral palsyDisability and Health Journal, 2016
- Service use and family-centred care in young people with severe cerebral palsy: a population-based, cross-sectional clinical surveyDisability and Rehabilitation, 2015
- Rehabilitation service utilization in children and youth with cerebral palsyChild: Care, Health and Development, 2013
- A report: the definition and classification of cerebral palsy April 2006.2007
- Development and reliability of a system to classify gross motor function in children with cerebral palsyDevelopmental Medicine and Child Neurology, 1997