Health inequities in unscheduled healthcare for children with intellectual disabilities in Ireland: a study protocol
Open Access
- 23 January 2020
- journal article
- Published by F1000 Research Ltd in HRB Open Research
Abstract
Background: Health inequities for children with intellectual disabilities (ID) are prevalent within different health systems, and children with ID have shorter life expectancies than the general population, higher mortality rates before the age of 17 and have a greater risk of potentially preventable hospitalisations. A health systems approach to research in this area provides a useful means through which research can inform policy and practice to ensure people with ID receive equitable healthcare; however, there is a paucity of evidence regarding how to address differences that have been described in the literature to date. The overall aim of this research is to establish the extent of health inequities for children with ID in Ireland compared to children without ID with respect to their utilisation of primary care and rates of hospitalisation, and to gain a better understanding of what influences utilisation of primary care and ED services in this population. Methods and analysis: The design of this research adopts a mixed-methods approach: statistical analysis of health data to determine the extent of health inequities in relation to healthcare utilisation; discrete choice experiments to explore General Practitioners’ decision making and parental preferences for optimal care; and concept mapping to develop consensus between stakeholders on how to address current healthcare inequities. Discussion: By applying a systems lens to the issue of health inequities for children with ID, the research hopes to gain a thorough understanding of the varying components that can contribute to the maintenance of such healthcare inequities. A key output from the research will be a set of feasible solutions and interventions that can address health inequities for this population.Funding Information
- Health Research Board (ARPP-A-2018-003)
This publication has 30 references indexed in Scilit:
- Hospital Admissions in Children with Down Syndrome: Experience of a Population-Based Cohort Followed from BirthPLOS ONE, 2013
- Designing a Stated Choice Experiment: The Value of a Qualitative ProcessJournal of Choice Modelling, 2012
- Access to Secondary Healthcare for People with Intellectual Disabilities: A Review of the LiteratureJournal of Applied Research in Intellectual Disabilities, 2009
- Choice experiments in health: the good, the bad, the ugly and toward a brighter futureHealth Economics, Policy and Law, 2009
- Conducting Discrete Choice Experiments to Inform Healthcare Decision MakingPharmacoEconomics, 2008
- Physician Visits, Hospitalizations, and Socioeconomic Status: Ambulatory Care Sensitive Conditions in a Canadian SettingHealth Services Research, 2005
- Understanding Health Disparities and Inequities Faced by Individuals with Intellectual DisabilitiesJournal of Applied Research in Intellectual Disabilities, 2005
- Concept mapping: an introduction to structured conceptualization in health careInternational Journal for Quality in Health Care, 2005
- Discrete choice experiments in health careBMJ, 2004
- Integration of primary health care services: perceptions of Australian general practitioners, non-general practitioner health service providers and consumers at the general practice–primary care interfaceEvaluation and Program Planning, 2002