Legal and Ethical Issues Surrounding the Use of Older Children's Electronic Personal Health Records
- 1 July 2018
- journal article
- research article
- Vol. 25 (4), 1042-1055
Abstract
This article explores the legal and ethical issues surrounding the production, storage, retrieval and use of electronic personal health records of children aged 14 years and over. Specifically, we explore: (1) the capacity, consent and competence issues; (2) privacy and confidentiality concerns; (3) the tension between a child's right to autonomy and his or her parent's or guardian's rights and responsibilities; and (4) outline implications of this for the implementation of Australia's My Health Record system, particularly for children with communication disability who are high users of health systems and have high health information exchange needs.Keywords
This publication has 10 references indexed in Scilit:
- The health literacy demands of electronic personal health records (e-PHRs): An integrative review to inform future inclusive researchPatient Education and Counseling, 2018
- A content analysis of the consumer-facing online information about My Health Record: Implications for increasing knowledge and awareness to facilitate uptake and useHealth Information Management Journal, 2017
- Demographic characteristics of Australian health consumers who were early registrants for opt-in personally controlled electronic health recordsHealth Information Management Journal, 2017
- Legal, ethical, and rights issues in the adoption and use of the “My Health Record” by people with communication disability in AustraliaJournal of Intellectual & Developmental Disability, 2017
- Meaningful Use of a Confidential Adolescent Patient PortalJournal of Adolescent Health, 2016
- A therapeutic approach to assessing legal capacity in AustraliaInternational Journal of Law and Psychiatry, 2015
- A personally controlled electronic health record for AustraliaJournal of the American Medical Informatics Association, 2014
- Youth and Young Adults With Cerebral Palsy: Their Use of Physician and Hospital ServicesArchives of Physical Medicine and Rehabilitation, 2007
- Use of health care among adults with chronic and complex physical disabilities of childhoodDisability and Rehabilitation, 2005
- Access to health care among Australian adolescents young people's perspectives and their sociodemographic distributionJournal of Adolescent Health, 2004