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“Il faut continuer à poser des questions” patient reported outcome measures in cystic fibrosis: An anthropological perspective

Rosa Coucke, Audrey Chansard, Véronique Bontemps, Dominique Grenet, Dominique Hubert, Clémence Martin, Elise Lammertyn, Emmanuelle Bardin, Veerle Bulteel, Frédérique Chedevergne, Muriel Le Bourgeois, , Isabelle Honore, Hilde de Keyser, Maya Kirszenbaum, Paola de Carli, Isabelle Sermet-Gaudelus, , Jutta Bend, Claire Bresnihan, Anne Calvert, Anna Fonts, Andreas Hager, Maxime Hautrive, Trudy Havermans, Diana Hofmann
Published: 1 February 2021
Journal of Cystic Fibrosis ; doi:10.1016/j.jcf.2021.02.009

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Keywords: Cystic fibrosis; Patient-led research; Patient reported outcome measures

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