Improving caring quality for people with dementia in nursing homes using IPOS‐Dem: A stepped‐wedge cluster randomized controlled trial protocol
Open Access
- 7 July 2021
- journal article
- research article
- Published by Wiley in Journal of Advanced Nursing
- Vol. 77 (10), 4234-4245
- https://doi.org/10.1111/jan.14953
Abstract
Aims We aim to evaluate the effectiveness of the Integrated Palliative Care Outcome Scale for people with dementia-based case studies to improve the caring quality for people with dementia in nursing homes by frontline staff and family members. Background Swiss nursing homes mostly care for people with dementia. This population is at high risk of receiving little to no palliation for their complex needs. The majority of Swiss frontline healthcare staff do not systematically report on the needs of their residents. Additionally, family members do not routinely participate in assessment processes. Design We will conduct a stepped-wedge cluster randomized trial of repeated assessment using the Integrated Palliative Care Outcome Scale for people with dementia (IPOS-Dem) and subsequent case studies. Clusters will consist of Swiss nursing homes randomly assigned to one of three sequential intervention time points. Methods The study population will consist of people with dementia living in nursing homes with and without specialized dementia care facilities. Over 16 months, staff working at the frontline and family members will assess the needs and concerns of people with dementia using IPOS-Dem. Depending on sequence allocation, facilitated case studies will start after 3, 6 or 9 months. The primary outcome will be caring quality measured by QUALIDEM. The secondary outcome will be symptoms and concerns, as indicated by the IPOS-Dem sum-score. The Zürich Ethics Committee approved the study in 2019 (2019-01847). Impact The results of this study will contribute to improving the effectiveness of person-centred care for people with dementia. Collaboration between healthcare staff and family members will be systematically developed and built upon thorough assessment using the IPOS-Dem and related case studies. The use of IPOS-Dem will offer all frontline staff a systematic approach to have an independent voice within the nursing process, regardless of their qualification or grade.Keywords
Funding Information
- Schweizerische Akademie der Medizinischen Wissenschaften (PC 20/17)
This publication has 55 references indexed in Scilit:
- Core Domains for a Person-Focused Outcome Measurement System in Cancer (PROMS-Cancer Core) for Routine Care: A Scoping Review and Canadian Delphi ConsensusValue in Health, 2013
- Polypharmacy in Nursing Home in Europe: Results From the SHELTER StudyThe Journals of Gerontology, Series A: Biological Sciences and Medical Sciences, 2012
- Validity, reliability, and feasibility of a quality of life questionnaire for people with dementiaZeitschrift für Gerontologie und Geriatrie, 2011
- Efficacy of treating pain to reduce behavioural disturbances in residents of nursing homes with dementia: cluster randomised clinical trialBMJ, 2011
- Study Protocol of a Randomised Controlled Group Trial of Client and Care Outcomes in the Residential Dementia Care SettingWorldviews on Evidence-Based Nursing, 2010
- Research electronic data capture (REDCap)—A metadata-driven methodology and workflow process for providing translational research informatics supportJournal of Biomedical Informatics, 2008
- Developing and evaluating complex interventions: the new Medical Research Council guidanceBMJ, 2008
- What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementiaInternational Journal of Geriatric Psychiatry, 2008
- QUALIDEM: development and evaluation of a dementia specific quality of life instrument. Scalability, reliability and internal structureInternational Journal of Geriatric Psychiatry, 2006
- QUALIDEM: development and evaluation of a dementia specific quality of life instrument––validationInternational Journal of Geriatric Psychiatry, 2006